Oh… Hi. It’s been a while.

It’s been a long time since I’ve updated this blog… talk about stagnant. Suffering Sux must be what pops up when you Google the word “stagnant”. As most of you know, we returned from our epic journey to the Mayo Clinic in Minnesota around the first of June. Unfortunately, this medical visit didn’t really provide … Continue reading

Snippets from the nearly HERE and not so distant NOW…

I Saw God! This past week I met god. Seriously, I did – in a dream. He is a simple fellow, he doesn’t have a lot of depth. But he is quite animated, literally. If my dream holds any merit, God is a 2D cartoon character.   It was a simple yet classic representation. He … Continue reading

Back from the Almost-Dead… Yet Again

{EAV:c2b5045fabef62f2} Well, it seems like I’ve made it through another serious health scare. The Monday before last, I went in for a routine follow-up visit with my Rheumatologist. As usual, labs were ordered to be sure that my numbers were good. So Liz and I zipped into the lab, got my blood drawn, and we … Continue reading

Breakin’ Back into the ol’ Blog

You know the old adage, “time flies when you’re having fun”. Well, I can attest to the fact that time still flies even if you’re not having fun. I took brief glance at the front page of Suffering Sux the other day, and I absolutely could not believe that my last entry was dated, August … Continue reading

Runnin’ Rough

I did everything that I could do to stay away, but the gravitational pull of the hospital obviously has a strong, unyielding grip on me, and this last trip to the hospital was just plain frustrating. This time I had to make the dreaded trip to the ER because I was running a fever of … Continue reading

Quite frankly, I’m friggin’ bored

A significant span of time has passed since I’ve provided y’all with a fairly comprehensive overview of my recent health status. Although, between fairly infrequent blog updates, and Facebook status updates, many of you are likely to be caught up with my current situation. But, we recognize that some of you are not quite as plugged … Continue reading

Goodbye Dr. Hahn

In mid-May Liz and I received some startling news. In a casual email correspondence with Dr. Hahn’s assistant, we were informed that Dr. Hahn is retiring at the end of June. There was no official notice, and no suggested referrals to other doctors. It was just a simple FYI embedded within the body of a … Continue reading

Fighting for my Life Moment by Moment

We’ll I’ve been having some hard times, yet again. The IVIG infusions seem to help, but in a very limited way. The therapy is very costly, and the doctors don’t feel that that my limited response (thus far) is worth the expense, and the risk. I will receive two more infusions, but if I don’t … Continue reading

Down for the Count

Yes, I’m down—both figuratively and literally. For the past three to four months I’ve been experiencing mild to moderate muscle weakness primarily in my trunk, neck and upper thigh muscles. At first the weakness was fairly minor.  After a couple of hours of sitting up, I would just start to experience an overall sensation of … Continue reading

Curly Hair

Re-post from my Caring Bridge site on 9-6-11 (unfortunately, still relevant)   Yup… that’s me. Three fifty-eight am—bored in bed again. INSOMNIA! This is what happens to people when they’ve been hospitalized a lot. They cease to be able to sleep for a solid six to eight hours a night. How do I know? Well, … Continue reading

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