Quantum Event: B-Day #42 Power Prayer Polygon Tomorrow@ Noon

I hope that all of you are enjoying your Thanksgiving weekend with LOTS of great food and fine company. It’s almost my forty-second birthday, and unfortunately, I’m facing some especially challenging times (health-wise). In an effort to intervene, my dear family and friends will conjoin spiritual and mental forces into a cohesive and focused mass … Continue reading

Back from the Almost-Dead… Yet Again

{EAV:c2b5045fabef62f2} Well, it seems like I’ve made it through another serious health scare. The Monday before last, I went in for a routine follow-up visit with my Rheumatologist. As usual, labs were ordered to be sure that my numbers were good. So Liz and I zipped into the lab, got my blood drawn, and we … Continue reading

Goodbye Ol’ Friend

A little over a week ago, we lost a superstar of a cat. He had become an absolute fixture in our lives, weaving his way just a little deeper into our hearts everyday for the last almost-nineteen years. I still can’t believe that he’s gone, but, maybe it’s because his spirit is so strong that … Continue reading

Runnin’ Rough

I did everything that I could do to stay away, but the gravitational pull of the hospital obviously has a strong, unyielding grip on me, and this last trip to the hospital was just plain frustrating. This time I had to make the dreaded trip to the ER because I was running a fever of … Continue reading

Hot New Muscle Community–Sign up for Shay’s Angels today!

Dear Friends and Family, As many of you know, I have been facing additional health complications involving neuromuscular symptoms that are severely impacting my basic functions, such as sitting, swallowing and even breathing. The working diagnosis as of right now is Myasthenia Gravis (MG), which is a rare autoimmune neuromuscular disease, but is much more … Continue reading

Quite frankly, I’m friggin’ bored

A significant span of time has passed since I’ve provided y’all with a fairly comprehensive overview of my recent health status. Although, between fairly infrequent blog updates, and Facebook status updates, many of you are likely to be caught up with my current situation. But, we recognize that some of you are not quite as plugged … Continue reading

Fighting for my Life Moment by Moment

We’ll I’ve been having some hard times, yet again. The IVIG infusions seem to help, but in a very limited way. The therapy is very costly, and the doctors don’t feel that that my limited response (thus far) is worth the expense, and the risk. I will receive two more infusions, but if I don’t … Continue reading

Down for the Count

Yes, I’m down—both figuratively and literally. For the past three to four months I’ve been experiencing mild to moderate muscle weakness primarily in my trunk, neck and upper thigh muscles. At first the weakness was fairly minor.  After a couple of hours of sitting up, I would just start to experience an overall sensation of … Continue reading

Happy-Happy Joystick

Another wallop of bad news came rolling my way this week. As if things aren’t bad already, I now have an additional diagnosis, or rather, an extension of an existing diagnosis with which to contend. As some of you may already know, a condition known as Avascular Necrosis (AVN), basically bone death, is a somewhat rare … Continue reading

The End Marks the Beginning (Part I)

I almost died last year. Actually, I came close to death three times during this past year. But one incident in particular, on a verdant September afternoon, brought me very, VERY, close to “the other side”. My body didn’t much like the Cytoxan that was dripping into my veins, and it reacted in an undesirable way. … Continue reading

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